O.k. I just had the scare of my life! After church I decided to finish building a fort for Jacob & Joey. Abby was in her bounce chair, being fed and content. Awhile later I came in and Matt noticed that her Micky button was GONE!!!! For those of you who don't know what this is, here is a photo to the right. This is placed in her tummy and her feeding tube attaches to it so she can eat. I have heard horror story's of kids pulling them out, but never thought Abby would be able to do this! This device is held in the stomach (see photo) by a balloon filled with water. This balloon is the size of a big bubble gum ball, now imagine this being pulled through the width of a straw!!! Not only is that shocking, but this hole IMMEDIATELY begins to close if something is not put back in ASAP! Well I had been in the garage for a few hours (yes I had the monitor with me) and when I rushed to see her, the hole was closed!!!! I ran upstairs and grabbed the catheter that they give you as a temporary plug to keep the hole open until you can get to the hospital. When I tried to push it in she giggled and then immediately started to cry... when you cry you use your stomach muscles which made it that much harder... I was desperately praying I would not hurt her and that it would go in, that it was not closed so we didn't have to do an emergency surgery to re-open! Finally I got it in, but then had to find the Mickey button, re-lube that pull out the catheter and re-insert the Mickey! Oh it began to bleed and I began to go numb, all I saw in an instant was us in the waiting room of Children's hospital... I felt like such a failure! Thank the Good Lord I got it in and she is sleeping now. I tell you just when you think everything is fine BAM! When Abby was less than a month old we had to make the decision to have this surgery done in order for her to survive, that was the hardest decision I think Matt and I ever had to make. Just the thought of her little body being cut into in and foreign objects being put in place in order for her to survive, I am so thankful for otherwise she would not be with us now, but I remember vividly that I could not stomach even looking at this Mickey button and would get quezzy when I HAD to as her caretaker. God has allowed me to go through some really ruff stuff, things that I never thought or could imagine I would have to endure, but He is faithful and just and full of mercy and each moment of each trying second He has held me, encouraged me and never left my side. He has never asked me to go it alone and this afternoon He was right there with me giving me the strength to do something that normally would make me loose it. Thank you Father.
My Past Writings
- Behind A Frowning Providence
- 12 Years
- 1st session
- 2008
- 25 Tam Tid-Bits
- ABBYS NEW STROLLER
- Abbs and Thumb
- Abby at 3 months
- Abby's Adventure Photo
- Abby's moving
- Abbys 1st Photos
- Abbys hip results
- Abigail's Stander
- All of Abbys names
- All this PAIN
- An Old Perspective
- Autos For Sale
- BY Emily Perl Kingsley C1987 all rights reserved
- Back from NY July 2008
- Back in the saddle again
- Ball game and concert with friends
- Brotherly Love
- Bruno Chair Lift
- Chapman Family Photo
- DME EQUIPMENT
- December 7th 2006
- Don't Cross That Bridge
- Dr. Devinskie
- Encouragement
- FINAL POST 2/2009
- Fall Photos
- Fun
- Fun Pic's
- Gobbel Gobbel
- God is so Good
- God speaks to the heart in the
- Guest Book thoughts
- History of 2007
- ITS FICTION
- Im now down stairs
- In the Fire
- It's ganna all be o.k.
- Jacob Ryab Fahmer
- Jacob and Joey
- January 1st 2009
- Jeremy Camp Song There Will Be A Day
- Joeys words
- Life's Too Short
- Love that hair
- March 8th 2007
- March 8th 2008
- More Than Conquerors
- Mother Daughter Photo 2008
- My 40th
- My New Blog
- My faithful Sisters
- NEW BLOG ADDRESS
- NYU EEG
- Needed Durable Medical Equiptment
- Nine Years Strong
- October 2006
- October 31st 2008
- Oh La La Apples
- One foot infront of the other
- Our Special Time Together
- Out with the old and in with the new The in home nursing moto
- Oy vey what a day
- Panic...
- Photo taken outside our home a few days ago
- Plum Line Services
- Poem Blogger version
- Prayers For Little Angels
- Quiet Time
- Reflections of me
- SEIZURES
- Sad Lost Soul
- Santa's Village
- Santification
- Say Cheese
- Seizures I
- Seizures are back
- September 8th
- Sheer Joy with Jessica
- Silence
- Stars
- Surgery Update
- Tamara's Back Results
- Tamaras back
- TeeJay My New Horse
- Tenant verses Master
- Thank You Aunty Alice
- Thank Your Lord
- Thanks for your concerns
- The Hart Walker
- Uncle Tom's Glasses
- Up and Downs
- Update
- Very sad...
- Where we have been since 2005
- Womanade of Castle Rock
- Wonderful Book
- Words Better Left Unspoken
- Words Better Left Unspoken II
- YOU ARE GOD ALONE
- a wee bit of me tree
- few more of Abbs things
- information
- simple
- still seizing
- updates
- video